Darn it! I am! I feel awful that I haven't kept up with this blog like I should be. I am disappointed in myself but I wont let more time slip away unwritten. Maddie is doing a ton of new things and I want to document them all. Her second birthday is next week and while she is not walking yet, she is pulling to stand and cruising very well. Our goal is for her to be walking on that beach sand this summer :) She began hands and knees crawling about 5 months ago and she is fantastic at at now, so much so that she has little interest in standing alone. It was confirmed by her PT that she needed orthodics in her shoes to help stabilize her ankles. We got them last week, they are a size 5 and Maddie's current foot is a size 3. We bought the recommended shoes for them and they seem huge. Now she has even less interest in walking. Go figure. Its only been a few days so I am hoping this will change.
Our big girl is feeding herself with a spoon, no fork yet. She is a signing machine and knows the following words without prompting. Meaning I say the word or show her a picture and she signs it! Amazing. I am so proud of her.
mama, dada, dog, baby, ball, eat, drink, milk, more, please, thank you, cow, fish, and quite a few others I cant think of off the top of my mind. She is so smart. She has this adorable way of letting you know what songs she wants you to sing to her. I will have to take some pictures of it to post later. She knows "If you re happy and you know it" and "Wheels on the bus" and asks me to sing them at least 20 times a day.
On the hearing aid front, still the same. I have yet to find a suitable ENT here locally that either has a halfway decent bedside manner or wont accidentally puncture her eardrum. Thats a whole other post. I just want a solid answer about her hearing loss once and for all. I might wait my entire life. Its been a huge battle to keep her aids on and I have all but given up some days. We are getting new molds on Thursday so I am praying they will be a better fit and easier to keep on.
Her thyroid levels at last check were pretty good. Her synthroid dose is still very high for her age/weight (50mcg) but it took a year to get them close to normal. The thyroid gland is the command center of the brain. Potentially the most detrimental thing that could happen to Maddie is for her to miss a few doses of her synthroid. Dr. D still believes she may not even have a thyroid gland at all because of her levels when she was first born. The only way to know for sure is to take her off of all the meds for a week and see how out of whack they are. Not an option at all Im willing to explore anytime soon. She will get a whole new set of blood work done at her 2 year check up next week.
Well, thats it for now. Im off to bed, we have a long week of party planning to do! I have some great photos to share in my next post.
Subscribe to:
Post Comments (Atom)
No comments:
Post a Comment